Experience Life and Family Foundation VA
Living with Sickle Cell
About
A Bit of Background
The Life and Family Foundation of Virginia is a community-based organizational (CBO) hub for the State of Virginia providing Advocacy, Education, Empowerment and Partnerships. The hub is for individuals, families, medical practitioners, and care givers of those with health care problems related to Sickle Cell Disease, a chronic disease with acute, painful debilitating systemic syndrome characterized by chronic anemia, acute painful episodes, organ infraction and chronic organ damage often resulting in shorter life expectancy.
Activities
Advocacy
Serve as an advocate for initial and continued access to quality medical care, treatment, and transitional programs more...
Educate
Increase knowledge and awareness of individuals and families who suffer from Sickle Cell Disease more...
Empower
Support and teach individuals and families to understand their specific Sickle Cell Disease and family trait status more...
Partner
Partner with the state and local government, community groups, hospitals, churches, pharmaceutical corps, educational foundations, higher educational institutions, to support the Sickle Cell community more...
"You have not lived a day until you have done something for someone who can never repay you."